I also have MCAS. I do not tolerate any kind of gluten from the store. I’ve been doing a lot of research on sour dough. Debated on going down the gluten free sour dough but after reading this, I’m wondering if I should give it a try with using good, pure flour?
Side question- what do you take to manage your MCAS? This disease is absolutely terrible and wreaks havoc at any given time 😪
Hi, Jenna. First, you have my sympathy for your suffering. MCAS is indeed very challenging.
I do not take any prescription drugs or supplements, and I can tell you that I've had the best results with this program: https://guptaprogram.com/
I can also tell you that the problem isn't *really* food, at least not at the core. It's all caused by a loop in the brain. I never got any lasting relief from any diet, and I've tried them all.
That said, I avoid eating inflammatory foods: all processed food, alcohol, sugars (including HFCS), and caffeine. I eat pasture-raised meat and dairy, clean grains that I bake after soaking or making into sourdough, and plenty of fats. I also regularly include fermented vegetables in my diet, as well as fish oil and minerals from seaweed. Basically, I ignore mainstream advice. I follow Sally Fallon's diet as outlined in The Nourishing Tradition, but I'm not a zealot about it if I want to go out to eat or something.
I also don't smoke. I exercise and meditate every day. I go outside every day. I shut off my devices at 7 pm. I dance and do somatic techniques. I also try to relax and not do any of this too much like the overachiever that is my tendency ;)
You can buy raw milk and the New Melle food co-op. I haven't been yet, but I learned about it at the expo.
I really don't want to move because I'm so established, thankfully I have enough land I could pull off dairy goats and stay in ordinance here in Overland since I have 2 acres. The world is not quite crazy enough for Andy to jump in on it with me but I've almost got him there. Plus my neighbors have goats, a friend half a mile away has goats, both of them have an unfixed male, so I have breeding handled!
I did know this about King Arthur! Will definitely switch. I hate how just when you think you can trust a company and stop reading their labels they go and do something like this.
Good to know. My mom has a habit from her youth as an immigrant of purchasing the cheapest food available, which of course means the most adulterated. The bread is an abomination. I have been thinking about sourdough. Thanks for the info. Also, where do you get your culture?
Celiac here! The celiac disease and all the food additives have brought me to the point that I literally can only eat animal products (without additives beyond basics like salt and cultures) and produce from my own back yard (or trusted organic sources). Everything I eat has to be from scratch, all grains mess with me now.
I would love to start making sourdough for my family, but have to keep my house gluten free for my safety with airborne flour and cross contamination. I so wish I had tried making sourdough in the past because I don't want to try gluten free sourdough, which is very difficult, without any experience at all.
People, pay attention to labels, because one day you're young and don't realize all the little messages your body is telling you about all the crap you're putting into it and then BAM you find yourself debilitatingly sick and always finding another condition or reaction and can basically only eat carnivore without feeling like death.
Hey, I'm just so happy to feel good I have lost the fear of missing out. It's freeing because honestly, minus the bread, I probably eat closer to the way our ancestors ate than most people. ;)
Absolutely! I’m trying to figure out if I need to move now if only so I can raise dairy goats, as all pasteurized food is giving me trouble. I buy raw goat milk from a local, but she didn’t show up to market this week, and I’m hurting.
Oh, Sarah, I’m so, so sorry. I’m really grateful to have found a path in which grains are OK, but for how much longer, who knows. I’ve seen those gluten-free sourdough recipes. If you do try it, I’d be curious to know how it works.
I have a daughter with celiac and another with multiple food allergies, including most glutens. My granddaughter is also hypersensitive to gluten. I miss baking beautiful loaves!! I had a starter made from Zinfandel grapes when we lived in CA. It was lovely.
I also have MCAS. I do not tolerate any kind of gluten from the store. I’ve been doing a lot of research on sour dough. Debated on going down the gluten free sour dough but after reading this, I’m wondering if I should give it a try with using good, pure flour?
Side question- what do you take to manage your MCAS? This disease is absolutely terrible and wreaks havoc at any given time 😪
Hi, Jenna. First, you have my sympathy for your suffering. MCAS is indeed very challenging.
I do not take any prescription drugs or supplements, and I can tell you that I've had the best results with this program: https://guptaprogram.com/
I can also tell you that the problem isn't *really* food, at least not at the core. It's all caused by a loop in the brain. I never got any lasting relief from any diet, and I've tried them all.
That said, I avoid eating inflammatory foods: all processed food, alcohol, sugars (including HFCS), and caffeine. I eat pasture-raised meat and dairy, clean grains that I bake after soaking or making into sourdough, and plenty of fats. I also regularly include fermented vegetables in my diet, as well as fish oil and minerals from seaweed. Basically, I ignore mainstream advice. I follow Sally Fallon's diet as outlined in The Nourishing Tradition, but I'm not a zealot about it if I want to go out to eat or something.
I also don't smoke. I exercise and meditate every day. I go outside every day. I shut off my devices at 7 pm. I dance and do somatic techniques. I also try to relax and not do any of this too much like the overachiever that is my tendency ;)
I wish you the absolute best in your recovery.
You can buy raw milk and the New Melle food co-op. I haven't been yet, but I learned about it at the expo.
I really don't want to move because I'm so established, thankfully I have enough land I could pull off dairy goats and stay in ordinance here in Overland since I have 2 acres. The world is not quite crazy enough for Andy to jump in on it with me but I've almost got him there. Plus my neighbors have goats, a friend half a mile away has goats, both of them have an unfixed male, so I have breeding handled!
Also, you have a great setup! How wonderful.
Thanks for that tip!
Really great sleuthing to find the trigger!
Thank you! It’s been a lifetime of practice, unfortunately.
I struggled with my sourdough starter, eventually I bought some off Amazon, it's still going strong.
Well, that’s the next-best thing!
I used KAF and didn’t know about this--thanks for pointing it out
You’re welcome!
I did know this about King Arthur! Will definitely switch. I hate how just when you think you can trust a company and stop reading their labels they go and do something like this.
Thanks for the heads up!
Sure thing, Joanne! This is specifically their bread flour. Not sure if they've changed the rest of them.
Good to know. My mom has a habit from her youth as an immigrant of purchasing the cheapest food available, which of course means the most adulterated. The bread is an abomination. I have been thinking about sourdough. Thanks for the info. Also, where do you get your culture?
I made the culture myself, wild-caught. I'll be sharing how to do this in upcoming posts. It's actually not complicated!
Celiac here! The celiac disease and all the food additives have brought me to the point that I literally can only eat animal products (without additives beyond basics like salt and cultures) and produce from my own back yard (or trusted organic sources). Everything I eat has to be from scratch, all grains mess with me now.
I would love to start making sourdough for my family, but have to keep my house gluten free for my safety with airborne flour and cross contamination. I so wish I had tried making sourdough in the past because I don't want to try gluten free sourdough, which is very difficult, without any experience at all.
People, pay attention to labels, because one day you're young and don't realize all the little messages your body is telling you about all the crap you're putting into it and then BAM you find yourself debilitatingly sick and always finding another condition or reaction and can basically only eat carnivore without feeling like death.
Hey, I'm just so happy to feel good I have lost the fear of missing out. It's freeing because honestly, minus the bread, I probably eat closer to the way our ancestors ate than most people. ;)
Absolutely! I’m trying to figure out if I need to move now if only so I can raise dairy goats, as all pasteurized food is giving me trouble. I buy raw goat milk from a local, but she didn’t show up to market this week, and I’m hurting.
Oh, Sarah, I’m so, so sorry. I’m really grateful to have found a path in which grains are OK, but for how much longer, who knows. I’ve seen those gluten-free sourdough recipes. If you do try it, I’d be curious to know how it works.
Ugh. I’m sorry!
I have a daughter with celiac and another with multiple food allergies, including most glutens. My granddaughter is also hypersensitive to gluten. I miss baking beautiful loaves!! I had a starter made from Zinfandel grapes when we lived in CA. It was lovely.
Celiac is awful. My uncle suffers from it. That grape starter is intriguing.
It was so good!! The grapes were wild, too.